Why Did Big Al And Charlie Get Fired, Articles J

Second Opinion Results, Johns Hopkins biopsy reading of 2 slides sent by Sloan: Have been told a health condition is not treatable. The Radiation Oncologist knew of Dr Busch (by now in Alpharetta, GA) and spoke highly of him. My girlfriend lives 2 blocks from the Emory Proton Clinic.We prayed on it and overthought the crap out of it. This fluid causes the prostate to swell and cause a number of bladder-related symptoms. Before In severe cases, a catheter may be required to relieve the symptoms. * PIRADS v2 Score: 5 Ozzieville (Michael), Hello All and thanks for being here~This is my first post.My husband was diagnosed with PC (adenocarcinoma with Extensive Intraductal Carcinoma Present) a few weeks ago. My long-term prognosis appears to be good with minimal side effects. Required fields are marked *, PHONE 310-827-7707 Inflammation of the prostate can affect the bladder and result in discomfort and other symptoms. They did another 3T-MPMRI (Siemens machine) and it showed a faint area, near the margin, and very close to the down stream sphincter of prostate. My plan is to choose quality of treatment over cost of the treatment. Second Opinions An accurate diagnosis is essential to ensure that the correct and most effective treatment is given. Of these, 40% obtained second opinions, most commonly because they wanted more information about their cancer (50.8%) and wanted to be seen by the best doctor (46.3%). I still have some urgency and frequency issues, but I am not complaining too bad. I also sent my biopsy slides to Johns Hopkins for a second opinion (Epstein's read was 3+4, but with lower pattern 4 involvement than the local pathologist.). Keeping a timeline and organized medical records is important because it can contribute to your treatment plan. asymmetric central zone tissue more pronounced on the left. Prostate cancer is the second-most diagnosed cancer in American men. John, I was diagnosed on 11 December, 2013. Though, for the most part the reports seem encouraging.I am curious if anyone has had something similar. * Gleason Score: 3+3, Slide 1 (vs. Sloan's 3+4) 2011 Feb;29(1):3-9. doi: 10.1007/s00345-010-0602-y. It is OK to be scared. You think your doctor is underestimating how serious your cancer is. Brachytherapy Experience with Dr. Albert Chang at UCLA? I sent a message to my urologist requesting my slides be sent to Dr. Epstein at Johns Hopkins for a second opinion and I also requested an Oncotype DX test to get an idea of risk for my low teal or basic teal cancer. Since I have gotten so much out of this forum, I thought Id provide my story to help others. I am unfortunately "officially" joining the club after getting my biopsy results today. So fingers crossed. Masks are required inside all of our care facilities. EDI am now 52 and not quite functioning like I did 4+ years ago. At this point, I am convinced I made the right treatment choiceOHFOR THOSE THAT DON'T KNOW, THE VA HAS MADE REPRODUCTIVE CANCERS A PRESUMPTIVE CONDITION FOR THOSE THAT SERVED IN MOST OF THE WAR ON TERROR LOCATIONS.Good luck fellas and my prayers are with all of you having to contend with this disease. For cancers that are less common, second opinions can offer more treatment options. Total Gleason score: 6 Suspicion for malignancy left anterior base-to-apex transition zone; Greenfield G, Shmueli L, Harvey A, Quezada-Yamamoto H, Davidovitch N, Pliskin JS, Rawaf S, Majeed A, Hayhoe B. BMJ Open. They agreed with the PI-RADS 4. It also rules out Brachytherapy. Low volume post-void residual urine is present in the bladder. Notice of Privacy Practices(Patients & Health Plan Members). Will these places of excellence consider me, or am I bound to my regular doctor for insurance purposes? It works. Has anyone sent Radiology (mpMRI) reports and images to Hopkins for Second Opinion Review? Anyone else encounter something like this? Thanks for Everyone's Help, poorly defined margins and intermediate to low T2. 4.5 year journey (18 months post proton beam), 4.5 Year Update (18 month post Proton Beam). Slight BPH findings. Do any of you have an opinion or actual experience with any of the three listed below? 1. Expert review of your case by a Cleveland Clinic specialist. * Size: 1.1 cm I am meeting with a multidisciplinary team of docs on March 18 at St. Joe's in Atlanta. Us Too Prostate is a great club and many of you have helped me a lot already. After a second opinion from both Johns Hopkins and Stanford, the two 4+3's were downgraded. I've also read that some study's have shown that intraductal may be resistant to hormonal therapy, radiation and/or chemo. My goals are to control PCa, to minimize side effects, and to keep options open in the future. I have selected Focal Laser Ablation as my future (soon) treatment. That said, I have some questions that I derived, keeping in mind that 99% of what I have learned since February has come directly from this group: Metastasis. Some men will have a very enlarged prostate, whereas others will have a mild enlargement. To learn more about how to get a Neuropathology second opinion, please visit our Neuropathology Division second opinions website. Benign Processes: Getting a second opinion on a diagnosis can reverse a diagnosis or alter the treatment plan. - DCE = (+) All rights reserved. * Seminal vesicle invasion: None. They seem to think it'll do the trick.I feel great and I am glad I chose this treatment path. I had the slides reviewed at Johns Hopkins and 1 of the HG PIN cores was changed to suspicious for adenocarcinoma while another HG PIN core was changed to benign. But you have to do both. The .gov means its official. Seminal vesicles are normal. Asking about other experience with conflicting Prostate Biopsy Opinions. When I inquired with the oncologist that I had selected for my therapy before receiving the second opinion whether I would be a candidate for Active Surveillance considering the downgrading, she said 'no' due to the intraductal component. It is OK to be overwhelmed with info. FOIA For cancers that are less common, second opinions can offer more treatment options. Primary Gleason grade: 3 No one at Hopkins has ever died of prostate cancer if he had Gleason 3 + 3 cancer." We specialize in minimally invasive procedures to treat BPH, including: For selected BPH patients, our specialists also perform transurethral resection of the prostate , a procedure that requires no incisions and has a high rate of success. If you are considering undergoing a specialized treatment, such as cancer surgery, within your HMO, it is important to inquire about the number of such procedures performed each year by the HMO and the results. There is no evidence You receive a secure, private online consultation without leaving home. It's a bit confusing since most experts now don't consider Gleason 6 to be a true cancer, so did i test positive in 2 cores or 4? The percentage of tissue with carcinoma is 45% Find more COVID-19 testing locations on Maryland.gov. - Johns Hopkins Medicine -- Get a Second Opinion The peripheral zone has a patchy signal pattern. Johns Hopkins Health - Second Opinions, Second Chances, Masks are required inside all of our care facilities, COVID-19 testing locations on Maryland.gov, High Blood Pressure May Take Its Toll on Your Kidneys. The PubMed wordmark and PubMed logo are registered trademarks of the U.S. Department of Health and Human Services (HHS). )As for side effectsI occasionally have some urgency/hesitancy having to pee. For these reasons, it is a good idea for HMO members to get a second opinion and make sure they are informed about clinical trials or other promising new treatments. Would it be rational to stay on AS until biopsy results show a higher volume of PCa for sampled cores (i.e. doi: 10.1002/cncr.30412. They also determined there was extrapostatic extension because there was some fat in the sample that involved the cancer. Experts believe that this study is the first in history to have achieved such results. It didnt look at changes of grading of the cancer.The chances for some type of modification based on a second opinion are even greater than the study indicated.Asking for a second opinion could lead to a significant change in surgical or medical intervention, Netto says.Even if the diagnosis error isnt catastrophic, such as advising a patient that he has cancer when he really doesnt, an error in grading can be consequential. Methods: The issues in my prostate from the first procedure onward have all been in the same area and the rest of my prostate from the first biopsy and subsequent MRIs onward have never shown any indications of cancer in other areas. I also learned a lot more about the high undisclosed risk of side effects of various treatment plans. The TRUS biopsy is behind me, the second opinion from Johns Hopkins is behind me, and its time for next steps. According to The National Institute on Aging, prostate problems are common after age 50. I am also doing a vegan diet with additional complementary substances. Getting a second opinion on a diagnosis can reverse a diagnosis or alter the treatment plan. We are vaccinating all eligible patients. Atrophy We experienced information overload and decision/analysis paralysis. Compared with other men, African-American men and men with a family history of the disease are at higher risk of developing prostate cancer. Second opinions from urologists for prostate cancer: who gets them, why, and their link to treatment . In other words, can I have a team here in Wisconsin yet travel elsewhere to get my MRI? I suggest for all that hear, "you have cancer" that you seek more opinions! Consultation with your nurse care manager. "We were surprised by the relatively large percentage of men who obtain second opinions for their prostate cancer," said lead author Dr. Archana Radhakrishnan of Johns Hopkins University in . I will say, the people I dealt with at Johns Hopkins were extremely nice and professional. Any score above 55 has a greater than 50/50 chance of finding clinically significant cancer. Request an Appointment 410-955-6100 In addition to providing a better understanding of your diagnosis, a second opinion can also shed new light on treatment options and give you confidence in how to proceed with your care. What is NOT OK is quitting or avoiding the bad news, or handing the entire decision over to someone else.Good luck fellas! A. Prostate, right base, core biopsy: In severe cases, a catheter may be required to relieve the symptoms. Keep in mind that not all PCPs are knowledgeable about prostate cancer or know the skill levels of all the specialists in the field. Some pathologists have more experience than others. doi: 10.1136/bmjopen-2020-044033. Blessings. (I must say that those low numbers concern me a bit.) At this point Im still ignorant about what I ought to be doing (MRI guided biopsy is what I should have gotten). Only one core was diagnosed with a small amount of 3+3 (it was one of the three targeted cores). * Size: 1.5 cm Seminal vesicles are normal. Call us with any questions: 410-955-2405, ext. Further, the two tumors in question have not really changed much in size for more than 2 years. Make an appointment: 410-955-5222 Coordinating with your Treating Physician At the Breast Cancer Program at the Johns Hopkins Kimmel Cancer Center in Baltimore, MD, a second opinion requires only that you or your doctor send us your pathology slides, key medical records and signed paperwork requesting the opinion. The linear amount of tissue with carcinoma is 23 mm Same with the amount of how much pattern 4. - High grade prostatic intraepithelial neoplasia (HGPIN) I really just want the results of their innovative PTEN test. 4. Hope to hear from a bunch of people. Good pathology readings require experience and a high level of expertise. I have been drinking out of an information fire hose. And by FAA Aeromedical Ruling, I'd need a few post procedure reports before being cleared to fly again.) They did another 3T-MPMRI (Siemens machine) and it showed a faint area, near the margin, and very close to the down stream sphincter of prostate. Diffusely decreased A patient suffering from an enlargement of the prostate may have pain in his lower abdomen and genitals. She put me in the hospital. I luckily found this webpage and I started reading everything I could get my hands on. Seeking second opinions is becoming standard practice, and it is mandatory at Johns Hopkins. Then about a month later I started 28 fractions of Proton Radiation.It was painless. * He said probably not candidate for watchful waiting because of tumor volume shown and seen on MRI. Dr also stated he was able to totally spare one of my nerves, but to get margin may have damaged one.