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You usually have radioactive iodine as a capsule or a drink. Prior to discovering the bump, I had reversed my Diabetes and had consistent HA1C readings of 5 or lower. 12 noon, lunch and VS with glucose readings. It doesn't matter where those cancerous cells might be. Reply. Severe reactions occur in 0.04% to 0.02% of people receiving contrast, with a death rate of one person in every 170,000. The most common side effect of radioactive iodine treatment immediately after it's been administered is that you will feel very tired for the first few days after the treatment. At that time my numbers were so low I was experiencing eye problems. And that training tells me I wont be ready to go back to work that afternoon. I was wondering can I color my hair at a salon. Consuming excess iodine: If you're at risk for hyperthyroidism and consume too much iodine (through your diet or medications), it can cause your thyroid to produce more thyroid hormone. One study looked at 157 people and tracked them both before and after their procedure. It is not common in the United States to hospitalize patients after RAI, but if you are receiving a particularly high dosage of iodine 131 and have no way to protect children or babies, it may be an option. It sounds like you are being underdosed based on your TSH level. In the mean time, thanks to the WWW. Results were. Hyperthyroidism is a condition where your body produces too much thyroid hormone so the treatment is to destroy your thyroid gland and stop that production. Contrast distinguishes, or "contrasts," between organs, tissues, bones, or blood vessels during your imaging exam. Havent met yet my endoc after the RAI. Your concerns should be taken seriously and evaluated. The answer is maybe, and it depends on the person, how much damage was done to their thyroid, and other factors that arent always in your control. Mary Shomon is a writer and hormonal health and thyroid advocate. As it turned out, my fears, or premonitions were right. Because the hair is sealed off during the BK treatment the color might not be able to penetrate into the cuticle. Alpha Lipoic Acid (ALA) and Thyroid Health: Is it Safe to Use? This is possibly TMI but any guidance and suggestions would be greatly appreciated. I go to great lengths to help my users better understand their health; however, the content you see here is not a substitute for medical advice. One thing I didnt see in your article is the correlation of Thyroid to Diabetes and CTS. I expect to be back to probably about 60 to maybe 70% and that is pushing it. I had severe fatigue, sweats etc and they did labs and said my count was high 5.4 and referred me to a civilian provider. Its not just that I cant stand the heat I get overheated so fast that I have to get in the AC or I feel like Im gonna pass out. Because it is entirely possible to only destroy a portion of your thyroid gland and not the entire gland. I have not lost any weight. Society of Nuclear Medicine & Molecular Imaging. Not only can doctors NOT find a thyroid replacement that works for me due to side affects, Ive lost 70% of my hair and have to wear wig, Ive gained more weight than ever before in my life, Im constantly fatigued, in pain, moody, still have a very fast heart rate between 110-130, anxiety (like Im still hyperthyroid, but Im not.) How is this happening? In most reports, the side effects include contrast dye allergy reactions, hyperthyroidism, and contrast-induced nephropathy accumulation of metformin. In this procedure, you are intentionally given Iodide, I-131, which emits radiation. Radioactive iodine is a type of iodine that is radioactive - iodine 131 (I-131). After reading all the comments I feel worried about the side effects.I saw in the report that they give me I-131 15mcl for hyperthyroidism. Over the next 5 years I gained another 10 lbs. I ordered the dutch test so have those results but I cannot read it and I am not sure what it all means. A small portion of radioactivity will be found in your saliva and sweat. Hives. I am 67 years old and just wonder how many years I may have either way. Im 60 years old, so its not like Ive got a full life ahead of me, not a big deal. I keep telling them that I dont feel so good flaking nails, dry skin, fatigue, weight-loss resistant with brain fog. Life has been very difficult as I basically go very few places now and live a life with little social contact. Now I cant stand the heat and I used to go to the beach all the time. I live in Florida and I cannot stand enjoy the outdoors anymore because of the heat. What will you really expect after your RAI, side effects Not to mention the radiation! My question is even though my thyroid is dead, should the T3 and T4 level be tested as well? For this reason, its ideal to try and lose weight prior to the procedure as opposed to after. You can get recommended amounts of iodine by eating a variety of foods, including the following: Fish (such as cod and tuna), seaweed, shrimp, and other seafood, which are generally rich in iodine. Many people undergo radioactive iodine treatment (RAI) without really understanding what is happening in their bodies. Radioactive iodine ( 131 -I) is a radioactive isotope that is administered orally, in a liquid or capsule form. It's permanent; once you take the iodine capsule there is no changing your mind. If you have any thoughts, I would appreciate those. 3 days after that I started to become sick after I ate an unable to sleep. This is more common if you still had a large part of your thyroid gland when you have radioactive iodine treatment. Researchers estimated a 12% increased risk for death from breast cancer and a 5% increased risk for death from . So is there any possible way to lose weight after the Radioactive iodone treatment or is it pretty much an absolute lost cause? It sounds like you are not being treated adequately. Nuclear medicine uses small amounts of radioactive material called radiotracers. Can you tell me about when I will start medication, or should I be tested first? And Ive become Flat with my emotions now. that I need doesnt come in one pill so Im taking 100 mcg one day and 75 on the other. It has to do with how important your thyroid is in regulating your metabolism and your weight. When you are given radioactive iodine, it is taken up by cancer cells and destroys themincluding those that have spread to the lymph nodes or other parts of the body. is this a side effect of this proceedure. A second set of scans will be taken after the contrast dye has been given. He may be the one with that piece of paper that says he can prescribe and administer that damned pill, but I have a gut feeling hes too cavalier about it all. Thanks Doctor please, I had private clinic blood test after RAI sir this was the result:17 may 2017 :DHEA:11.020(0.44-13.00) Any help will be appreciated. Fact sheet: guidelines for patients receiving radioiodine I-131 treatment. Iodine is also sometimes prescribed as a topical treatment for certain conditions that cause hair loss on the scalp. We know that that still leaves lots of options if your heart isn't already set on a color. Free T4. Warren Janowitz Radiologist Miami, FL. Approximately 90% of people who take radioactive iodine to treat hyperthyroidism need only one dose, although it may take up to 6 months for it to fully work. can i color my hair after radioactive iodine. If you are unable to avoid direct or indirect contact with infants and young children, ask your healthcare provider about the possibility of hospitalization. Hi,I have awhile to have enough hair to dye.I also have another 4wks. Just have my RAI 2days ago. I has RIT approx. Improving gut function can be done through diet and supplements. Unfortunately, the best way to prevent weight gain after RAI is to go into the procedure at a normal weight. If you need to add red tint to your hair, then using carrot juice is one of the easiest ways to do it. Verywell Health's content is for informational and educational purposes only. The good news is that you can fairly easily identify these symptoms and you can order tests to determine how well your thyroid is functioning. How will I know if I am producing my own thyroxine? P.S. 5PM supper with VS and glucose readings. I have been battling back and forth with weight gain and hair loss, mild Need better symptom control? My doctor has changed my meds 5 times I was doing better if my medication was a little on the high sideI had started to lose wait, had more energy & the best ever NO SWEATS, but she said no, WHY! Anecdotally, youve probably already heard stories about people gaining weight after their procedure. I had RAI in 2010 and was eventually started on a regime of 150 Levothryroxine daily, about 8 weeks post treatment. Another problem Ive faced is I ask one doctor about this or that feeling Im having and I get told that doctor doesnt deal with that have to tell the other doctor, I tell the other doctor and they tell me I have to tell another doctor because they dont deal with that issue. I read your list of vitamins all NINE of them, and the only thing I could think of is NO! Please see these articles which explain why weight loss is so difficult after thyroid removal or RAI: https://www.restartmed.com/levothyroxine-thyroidectomy-patients/ MY DOCTORS ADVICE ME TO STAY UNTIL MARCH OR APRIL FOR FURTHER CHECK UP.. Its probably a good idea to stay close to your doctor until your dose of thyroid medication is optimized. The thyroid is equipped with an active system or "pump" for moving iodine into its cells, where it is concentrated as iodide. But, if I was being honest, I think that most people should not rely on the possibility of restoring much thyroid function after their procedure. My exercise routine has been reduced because of back injuries and arthritis. Radioiodine treatment avoids surgery, anesthesia, and anti-thyroid drugs. It targets VEGFR, BRAF, and RET tyrosine kinase and inhibits the proliferation and angiogenesis of cancer cells. the tests after 3 weeks showed my TSH to be 12.920 and now she wants to increase the meds to 175. The doctor started me on .50 of Synthroid, and taking the first dose my eyes cleared the next day. Now, yesterday and today I had my Thyrogen injections, and tomorrow I go get my I 131 RAI pill and on home isolation for the following 7 days, and then my whole body scan. Is there anything I can do to protect myself as I am driving her. I am in a gym 3 days a week I do water therapy/aerobics 3 days a week and I still cant lose weight I try to eat a low calorie Healthy diet Mostly either paleo or keto and no matter what I do I still cant lose the belly fat. A swollen or tender neck and feeling flushed. https://www.restartmed.com/weight-loss-after-thyroid-removal/, Hello I had the rai treatment 33 years ago and I have never felt good since then , more recent they ultrasound my thyroid gland and the lady who did the ultrasound kinda freaked out saying to me where is your thyroid gland hat did they do it it, I was in the hospital with pancreatitisNo dr has told me there could be a reason for getting pancreatitis with hypothyroid and how can my blood tests say my thyroid is producing hormones and is low which means high . For most people, this means that you can expect to live at 80-90% of your 'normal'. You usually take radioactive iodine as a capsule that you swallow. meat. The interesting part was the B12 level was normal at 737 but methylmalonic acid slightly high(319) and homocysteine at 13.9. My endo physician would not increase the dosage so I went to my G.P. Hey! Some doctor told me to move to the mountains, which I did to avoid toxic chemicals. As I said earlier not everyone will necessarily need thyroid medication after they ablate their thyroid. Very small amounts of radioactive iodine may be absorbed by your salivary glands, and the lining of your stomach, which may cause side effects such as a sore throat or hoarseness. Thyroid hormone regulates the metabolic rate of an animal. Most of the radioiodine in your body will come out through the urine and stool. After that they again were having the same symptoms. and seriously lethargic?! not the treatment of choice for them. Any idea Sir ? I feel horrible. You can drive yourself, have someone pick you up and take you home, or take a taxi or private car. If contrast dye is used, you may feel some effects when the dye is injected into the IV line. This was published id a study by dr brunelli fro. I dont see such good numbers. Abnormal menstrual cycles. People may take RAI . I eat three meals with three snack times. This means avoiding public transportation, hotels, carpools, and in some cases, your . 8.1, Because I began feeling very unhealthy this week further blood tests were done. But why would you want to restore thyroid function to your thyroid gland if you had it destroyed because you were already producing too much? <0.01 Credit: iStock. The I-131 leaves your body through your urine primarily. So I had the ablation without much research on my own, and now Im at the highest weight of my life and miserable. Some people also feel flushed. Will you be able to lead a normal life? The good news is that not every single person who gets RAI will necessarily gain weight. They do this by either stopping your oral thyroid medication or giving you thyrogen. You should have your thyroid lab levels tested to see if you need medication. You might need contrast when you are having an X-ray, CT, MRI, or ultrasound exam. But, I am having a lots of rashes all over my neck and scalp, it got swollen and bumps. I think that she was supposed to maint. Yes, radiation therapy causes hair loss. You can find my recommendations on how to manage hair growth/hair loss with thyroid disease in this detailed guide: https://www.restartmed.com/thyroid-hair-loss/. My weight seems to be of no concern to him as long as my blood work looks okay. As so many of you, I too was very unaware of the many causes of having your thyroid removed can have on a person, or the underlying affects that can be caused by the I-131 RAI "therapeutic" radioactive iodine treatment. Please give me your thoughts. While we are on the topic of thyroid medication we should also spend a few minutes talking about other symptoms you may experience. Call (800) 542-1123 or visit www.labtechinc.com to learn more about protecting your home against radioactive iodine. How can I speed up a metabolism if I dont have a thyroid anymore because of the RAI? Too much of this hormone can lead to [] Hi, doctor, I am in a lot of pain I stay cold 100 percent of the time with body aches sleepless nights. Radioactive iodine treatment is a type of radiotherapy is used to destroy the cells in the thyroid gland, reducing the amount of hormones it can produce. Dr.DanielleWeiss is the founder of the Center for Hormonal Health and Well-Being, a personalized, proactive, patient-centered medical practice with a unique focus on integrative endocrinology. There is a paucity of literature on the minimum interval between contrast administration and RAI therapy. I would recommend that you read this article for more info: https://www.restartmed.com/normal-thyroid-levels/. If you have heard of this before is there a natural vitamin or something that will help me control the heat in my body? So, if papillary or follicular thyroid cancer has spread to any other part of the body, we can still use this therapy to find and destroy it. Fortunately, most patients experience reduced symptoms about a month after treatment. But you probably at least know a little bit about RAI or you wouldnt be here. Because the radioactive iodine used (known as iodine 131) may expose those around you to the effects of radiation (and theoretically negatively affect their thyroid glands), you will be given guidelines on how to prevent such exposure. Currently they have me on a combination of 100mcg Synthroid with 1 Grain of Armour (60mg. The thyroid gland relies on iodine to make the hormones necessary for the growth of healthy hair, teeth, and bones. Thank you and God bless! My hair is the one and only thing about my looks that is considered beauty. If a person with a health thyroid intakes the I131, it will damage their . But Im not a pretty woman, rather plane, and frumpy. With a regime as this, its no wonder for depression, no sleep! To further avoid exposing others to radiation:. I have AFib and concerned for my heart about going into the obese stage. of radiation.But I wonder after that if I can dye my hair.Unforuntly it is coming back completly gray.I will be thankful to have hair.But I don,t look good with gray either.I know some people do.Someone said they thought you had to wait a year.I hope their wrong.Thanks for your replys. The last person put me on methazolo and I read the awful side affects. Cats can receive a second treatment, if necessary. After Your Radioactive Iodine Treatment Getting home. I was experiencing heart palpations, diffuclty breathing while lying down, weight gain. I am a former Doctor of Osteopathic Medicine (no longer practicing) that now focuses on producing the information you see here while also formulating some of the best supplements on the market (in my HUMBLE opinion) :). Instead of working to actively reduce thyroid function in your body (which is what the treatment for hyperthyroidism is), you may want to start focusing on how to optimize what little thyroid function you have left. Because of PTC, I had a total thyroidectomy two weeks ago and now on Levo. I would say many of your symptoms are unusual but this article highlights some of the routine side effects that may be experienced. This usually means that you are being overtreated and are being put into a state of hypothyroidism. It Depends on These Factors, Add Back Therapy for Graves & Hyperthyroidism: When to use Levothyroxine, Hashimotos and Hyperthyroidism: Why it Happens & What it Means, How to Prevent Thyroid Surgery and Radioactive Iodine Ablation Therapy | Dr. Osansky and Dr. Childs. Strange I know. Does Taking Thyroid Medication Cause High Blood Pressure (Hypertension)? Youll still need to get those but the supplements can be used in addition to them. They have already said I would need to take the radiation iodine treatment. My GP at the time liked to keep me on that level despite blood results as he said it was better for patients to be at the higher end of the scale in case they needed a metabolic boost when ill. Hello, not sure if this post is still active. After rai treatment I had blood test results was :freet4 was 13.3pmol/L (11-23)free t3 was 4.30pmol/L it was normal (3.1-6.8) I was happy and I had another blood test 26 July 2017 and results was TSH was 0.01 (0.35-4.94) freet3 was 16.32 pmol/L (never ever high like this before) (3.1-6.8) my freet4 was 46.3 pmol/L (11-23) I was shocked how this happened after RAI treatment Sir ? Since then I have suffered most every day with severe chemical sensitivity. The following recommendations will give you an idea of precautions to take to avoid exposing other people (as well as pets) to iodine 131, which may be present in bodily fluids or occur as a result of close contact. It is also called radio iodine. Sleep apart from adults by at least six feet (a separate bedroom is recommended) and avoid sexual activity. The cold also affects me if its too cold I really get cold but thinking back I pretty much think I was always like that with cold. So when you take radioactive iodine your body will automatically take it up and store it in the thyroid gland. Since I was at the office a week ago complaining about what PTU was doing to my body I feel nervous about calling the endocrinologist again. Tips for Eating and Cooking While on a Low Iodine Diet. Can You Get Everything Your Thyroid Needs From Food? All rights reserved. I had a miscarriage about a year after the RAI treatment. This keeps the radioactivity from destroying other cells in your body and only allows for the destruction of your thyroid gland. I have expressed my symptoms to the dr and she did a panel revealing my TSH to be 3.687. Taking a safe nascent iodine supplement may boost hair health and growth in the . I was normal weight and now frustrated to be 30 pounds overweight. Then I get up at 7AM and during that first hour get my daily weight after I void and empty my bladder, and strip down for a true body weight. Because of this, people who undergo RAI (meaning those who destroy their thyroid gland) need some type of thyroid hormone replacement. I cant find anything suggesting these are expected symptoms after RAI. ordinary table salt and sea salt. Dr. Yash Khanna answered. Please help! It can also help to diagnose and treat some other cancers and conditions. Want to know why I'm so passionate about these topics? I moved doctors in 2016 and my new GP immediately put my dosage down to 125 despite my protestations that I felt absolutely fine on 150. If I have all of these symptoms and have had levels increase so much, is it worth seeing another dr due to my history or do you think this is normal? Family Medicine 59 years experience. I had this feeling when I went into surgery last Tuesday, but shrugged it off as just my fears in over time. But over the past month I see my weight dropping a half to a pound daily. 8PM HS snack and VS and glucose readings. 20 yrs ago. Then she said I would have to have iodine radiation if these pills didnt work. And in addition to going back to surgery for the left lobectomy, to expect to be on the Radioactive Iodine therapy. You can get by this side effect by simply banking some of your sperm prior to your procedure and then using that sperm at a later date with procedures such as intrauterine insemination. Iodine is essential for proper function of the thyroid gland, which uses it to make the thyroid hormones. 2 capsules of T3 Conversion Booster daily (important if you take T4 only medication!) By looking at markers such as your TSH, free t3, and free t4 you can get an idea as to what is actually going on. In regards to your question, its normal to feel terrible if your TSH is so high, but its not normal for your doctor to try and not optimize this level. A thyroid scan is a type of nuclear medicine imaging. With that in mind, lets jump into what you should expect after your procedure. I am now 54 years old. If I take a snack is determined on what my glucose reading was. Repeat the process if necessary. Since the science is inexact there are two ways of approaching the treatment. In earlier forms of Iodine contrast, people with Myasthenia gravis faced an increased chance of exacerbation of the disease. I have my EMG the end of the month and take things from there. Just realize that you will always be in a sensitive category and you will be more likely to gain weight compared to people with their thyroid intact. Men should sit down when urinating. I have been asked to transport a friend who is having Radioactive Iodine treatment both the day of and a couple days later for her followup scan. These effects include a warm, flushing sensation, a salty or metallic taste in the mouth, a brief headache, or nausea. I guess that is my main question because I am willing to do the hard work even if it takes a long time. You can obviously survive after RAI (otherwise they wouldnt do the procedure) but I want to teach you how to thrive afterward. Thank you! It is a good idea to increase your fluid intake after an imaging exam involving an iodine-based contrast material to help remove the contrast material from your body. Read More. Methimazole Side Effects You Should Be Aware Of (What to Expect), Hashimotos vs Graves Disease: Differences & Similarities, read more about my own personal health journey, free thyroid downloads, resources, and PDFs here, https://www.restartmed.com/hyperthyroidism-weight-gain/, https://www.restartmed.com/weight-loss-thyroidectomy/, https://www.restartmed.com/thyroid-doctor/, https://www.restartmed.com/thyroid-hair-loss/, https://www.restartmed.com/hormone-mastery/, https://www.restartmed.com/methimazole-weight-gain/, https://www.restartmed.com/product/thyroid-daily-essentials-thyroid-multivitamin/, https://www.restartmed.com/product/t3-conversion-booster/, https://www.restartmed.com/product/thyroid-adrenal-reset-complex/, https://www.restartmed.com/product/leptin-resistance-rx/, https://www.restartmed.com/normal-thyroid-levels/, https://www.restartmed.com/how-to-find-a-doctor-to-treat-your-thyroid/, https://www.restartmed.com/levothyroxine-thyroidectomy-patients/, https://www.restartmed.com/weight-loss-after-thyroid-removal/, https://www.restartmed.com/hypothyroidism-diet/, https://www.restartmed.com/product/thyroidectomy-rai-bundle/, 3 New Thyroid Support Supplements: Thyro Fuel, Thyro Biotic & Hashimotos Ab Rx, The 50 mcg Levothyroxine & Synthroid Medication Hack. When the gadolinium is injected, it is normal to feel coolness at the site of injection, usually the arm for a minute or two. Im worried more about loosing my hair than my life. Now they are suggesting a second treatment at a higher dose. Five years later I was diagnosed with a severe case of Graves and the doctor said RAI was the best course of action and convinced me of that. Do not share any towels, razors, toothbrushes, cups, spoons, forks, or dishes. If you find that your TSH is high or that your free t3/free t4 is low, then this may be the cause of your symptoms. The permanency can be seen as a benefit as patients condition will become stable and symptoms can be more easily controlled. I know this post is older but I am considering radiation! I had radiation iodine therapy in late September. Radioactive iodine is created when the unstable atoms of radioactivity is piggybacked onto iodine so it will be absorbed by the body. Lowered heart rate. What type of cancer is treated with radioactive iodine? Um, Im a night shift nurse on a dementia unit in a nursing home, would you want me taking care of your loved one and have the brain fog, the jitteriness, the irritableness, and depression? Claim Your Free eBook Now. I had an RAI about three years ago, due to hyperthyroidism. Memory loss. Its often a far better use of your time to find a new doctor than try to convince an old doctor to change what they think: https://www.restartmed.com/how-to-find-a-doctor-to-treat-your-thyroid/. I am going in for radioactive iodine treatment next week and wanted to ask what the best diet plan is that can stop me gaining more weight and help me to reduce my bmi. All my life my hair was thin and fine. Created for people with ongoing healthcare needs but benefits everyone. Any suggestions? 2023 Dotdash Media, Inc. All rights reserved, Mary Shomon is a writer and hormonal health and thyroid advocate. She enjoys giving lectures and writing articles for both the lay public and medical audiences. U.S. Nuclear Regulatory Commission. To increase the effectiveness of your upcoming radioactive iodine therapy, you may be prescribed a low iodine diet. 1. The highest sources (and those to be avoided) are iodized salt, grains and cereals, some breads . Will you be able to maintain your current weight? Last week labs getting better with a methylpro supplement. Findings from a study of patients who received radioactive iodine (RAI) treatment for hyperthyroidism show an association between the dose of treatment . Therefore, it may be found in varying amounts in all food and beverages. Hi doc! Perhaps the most concerning of all of the issues after RAI is weight gain. Some allergic reactions can cause severe anaphylaxis, but this . I had a partial thyroidectomy a week ago, (Right lobectomy) With this my Dr. noticed hard bumps in the tissue, and sent to pathology and cancer was found. Calculating the half life of radiation, it will be a couple months before I can be around nursing home residents and pregnant women, and each and every nursing home has several pregnant women on each unit and each shift. I had RAI back in 2010 For Thyroid nodules And I have been on hormone replacement ever since I get my blood tested every 3 months And Im either too high or too low So I keep getting switched from a 112 To a dose of 125 This is been going on for several year several years so now my doctor has me switch every other day Between the 2 doses to see if this will stabilize my levels My problem is the weight gain That came after the RAI treatment treatment.. However, it affects only the body part that is being treated with radiation. I can barely eat . Here is my story: A year ago I felt a bump on the right side of my neck, so on a routine follow up visit with my PCP for diabetes, I mentioned it to him. Because your thyroid has been ablated, you will most likely need thyroid medication for life. The radioactive iodine uptake test (RAIU) is also known as a thyroid uptake. Will it cause you to gain weight? I hope this post is still active. You can opt-out at any time. And, if you destroy your thyroid gland, it turns out that that may have consequences on your metabolism. Total testosterone was :10.47(7.60-32) low I have Graves disease and recently have a hyperthyroid flare up after being in remission, I went back on my meds but was recently taken off to see if I can do radiation.