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Be specific. Health eCooking is a registered trademark of Baldwin Publishing, Inc. Cook eKitchen is a designated trademark of Baldwin Publishing, Inc. Any duplication or distribution of the information contained herein without the express approval of Baldwin Publishing, Inc. is strictly prohibited. There is very little scientific evidence to guide us here. It has allowed me to do the thing I enjoy doing in life. Hey is a frustrated guy. No other issues. Anyway, talk to a surgeon who understands quality of life means. is my lack of top end performance indicative of someone with BAV & aortic coarctation? It doesnt help that I am a nurse. Dietz?) Search Hospitals, Join 375,000+ Patientsat Our Facebook Page Click here, HeartValveSurgery.com 2785 Pacific Coast Hwy, #517 Torrance, CA 90505 Phone: (888) 725-4311, 2023 HeartValveSurgery.com. I am a keen weightlifter, which is the basis of this post. The doctors tell me I will be able to run again at a level near to what Im accustomed to (50-60 miles per week) but are reluctant at this point to specifically tell me the limitations and restrictions Im to endure. Is the biggest risk (from numbness) a over-calcified valve which would cause lack of blood flow? Unfortunately, I really cant point you to such studies. Elite triathletes and heart problems I like to practice MTB and running competitively in local races. Thank you for your expert opinion. Enjoy! At the age of 12, she had a procedure to widen her valve as her heart condition continued to have an impact. "Thanks to the team at the Cleveland Clinic, I have a new aortic valve to go along with my new pulmonary valve from my last surgery," he wrote. Star Jones. I first wrote about BAV in a short post here at the blog back in 2009. Between one and two percent of all people have this defect, and it affects more men than women. We live at 6,500 ft (elevation) so Im not sure if its affecting my blood pressure when doing normal things. Latifah has taken on her mom's caregiving duties, along with relatives and a nurse, whenever she is on the east coast. Congrats! However, this is not always the case. No stenosis, no calcification. I have BAV with an ascended aorta and heart murmur. My father has struggled with heart disease since he was 50, and I lost him [in 2008].. Have you heard about the PEARS procedure? mod-severe regurgitation Diagnosis was made because pulse dropped to 30 (normally 52), and pacemaker was thought to be needed (no symptoms other than low pulse for a few days). Im wondering if you can advise me. For most athletes with only mild enlargement of the aorta and no problems with the aortic valve, there should be no activity restrictions. Bicuspid aortic valve (aka BAV) is a form of heart disease in which two of the leaflets of the aortic valve fuse during development in the womb resulting in a two-leaflet (bicuspid) valve instead of the normal three-leaflet (tricuspid) valve. Finding this site is such a relief / source of hope for me thanks so much Dr. Larry!. If I ever need surgery to replace my root , I understand that there is an element of complexity for such surgery, but after surgery, is life expectancy for individuals assumed to be shortened at all ? Its very helpful for people with heart problems. Questions currently remain about how long such repairs will last and whether patients might require re-operation at some point in the future. I do not know aorta measurements. The echo in Jan asc aorta Diam 4.2 cm z-score 6.4. I had AVR exactly 1 year ago to the date. Or its the result of the cumulative effect of the aortic and mitral valve leakage? PS I am really interested to know if HIIT is too intense a system of exercise for people with BAV. BAV was diagnosed in 196 newborns (prevalence, 0.77%), with a male-female ratio of 2.1:1. Many of us are not familiar with the many types and facets of the martial arts. I am also in grey zone waiting for surgery. I suspect it had been leaking for a long time, as I felt no different; however, my recovery from long runs took longer than in the past (old age?). Im a 30 yr old male, training 5 times a week rowing and strength training. We all appreciate it. Options for operation There are four valves of the heart, which are divided into two categories: Atrioventricular valves: The tricuspid valve and mitral (bicuspid) valve. Im 37 years old male, live in Croatia, 191 cm, 94 kg, very athletic, practicing various sports my whole lifetime. You might be wondering, with no disrespect to the great people of Cleveland, why Schwarzenegger, who surely has access to the finest hospitals under the sun, would choose to have surgery there. Although bicuspid . Today at my hospital, we do most 1st time aortic valve replacements for aortic stenosis (narrowing) this way and have started using TAVR for patients with previous AVR using tissue valves who need re-replacement. My cardiologist gave me green light for everything except strenuous exercise (used to train for ironman and similar challenges). Bicuspid aortic valve (BAV) is a genetic condition that causes the aortic valve to have two leaflets instead of three. Thank you very much for your answer. I am wondering because I know that weighlifting with bav isnt so good I feel terrible because i lov weightlifting and I have build a body that is so difficult for a 18 years old. Im not familiar with employment eligibility issues with BAV, even in this country. Bicuspid aortic valve (BAV) is the most frequent congenital cardiac defect, and affects 0.5-2% of live births. 1, 2 Much of the data relating to its complications derive from necropsy studies since reliable . Im not looking forward competitions nor marathons. Almost 15 years ago skilled surgeons replaced my aorta valve with a new replacement valve. Im keeping my heart rate below 150, 160 at most but just for short period of time. You should discuss this possibility with your doctor(s). (I'm a 17 year old female)After a heart echocardiogram yesterday we found out I have a bicuspid aortic valve, I originally went in to the cardiologist for extreme fatigue, constant racing heart (avg around 130bpm resting), palpitations, spells where I almost faint, feet swelling and turning purple, etc . We use surveillance (you mention every 6 months) because usually problems with progressive enlargement of the aorta or with the valve itself can be picked up before there is any lasting harm. Ive seen several cardiologist and they are divided in recommendations. Aortic dilatation is a common feature of BAV with a prevalence ranging from 20 to 84% , due to differences in assessment techniques, study population, aortic size thresholds, and heterogeneous nature of the . Guidelines suggest that athletes with BAV, normal size aorta, and no more than mild aortic regurgitation or stenosis can participate in all sports, without restriction.provided that they do not have an inherited connective tissue disorder like Marfan's's syndrome. no tiredness, no dizziness, etc. So you know, this is not uncommon for heart valve surgery patients. I was diagnosed with BAV about four years ago now by fluke whilst looking into my high blood pressure (I was only 24 at the time so I underwent a lot of testing due to my age and HBP the conclusion was it is hereditary, with many members of my family with HBP). His cardiologist said he cant play. that suffer from heart valve disease along with a link to the reference story about heart valve disease and their Twitter handle to tweet on and promote the Valve Disease Day. document.getElementById( "ak_js_1" ).setAttribute( "value", ( new Date() ).getTime() ); Dr. Larry Creswell on athletes and heart health. The Best Amazon Presidents' Day Deals of 2023. Shes quite the athlete. Apologies for my slow reply. This is true at rest and may be even more so during exercise. Given that risk, the current American guidelines recommend screening those children with echocardiogram to identify affected children. Thank you for this blog! Just a short info for whomever may read, I searched for Tims name and I found this page: Im not sure I have all the answers from afar. He wants to be normal. In the simplest terms, a bicuspid aortic valve can be a serious heart valve disorder in which the valve only has two leaflets, or flaps, that control blood flow through the heart. There is a readable section related to BAV. Perhaps your primary care doctor or cardiologist could help you find another specialist in your area who could help with thatlook over all of the pertinent information and share an opinion about whats safe. In my practice, we often do such second opinions (about all sorts of issues) and I have found that athlete patients usually value the information that comes from such visits. Bicuspid aortic valve. You have a good understanding of the issues. Theres a saying if you watch a group of kids running around, you would never know who had a heart defect unless they lifted their shirt. This list, which may shock you, includes Olympians, Athletes, Musicians and more, all with an invisible illness. 1) What kind of sports are recommend to me according to my situation? The current guidelines suggest that sports activities do not need to be restricted for patients with BAV who have no valve regurgitation/stenosis and who have no enlargement of the nearby aorta. My questions are: Moreover, there is a myriad of operations that such patients may have had, each with its on set of considerations. This has caused a Thoracic aortic aneurysm that is 4.3 cm. diagnosed wid BAV AND AS WITH AR I dont believe there is any evidence that would help us know if some forms are safer than others. Should I stop jiu-jitsu as it is a mix of anaerobic exercise (which I hear is bad) and aerobic exercise (which I hear is good)? Like I said, peoples experiences are all different. Many athletes with bicuspid aortic valve (BAV) may continue to participate in their sports.provided there are no other problems, either with the aortic valve or nearby aorta. Im aware that those days are past, but to abandon every activity seems like a prison sentence What is safe side threshold? I would pose these questions to your doctor(s) since they are most familiar with the details of your situation. Onside rations would be needed for hose with Marfans syndrome or other diseases of the aorta. 1,3,4,15 It can lead to chronic heart failure and increase the risk of acute aor-tic syndromes and sudden cardiac death.15 Michelena et al16 studied 212 cases of asymp tomatic bicuspid . which seems to suggest that he has returned successfully to the sport. Randyyour situation has many similarities to mine; I would be very interested in sharing experiences. Eventually I will need valve replacement. I was training for 11th marathon at the time (over the past 13 years). I am a 48yo competitive cyclist who is very concerned with being able to return to my former ability to hit high effort levels following open heart surgery. Hey is almost looking forward to getting it fixed. "I have heart disease, and I found out about five or four years ago, the singer, now 49, told PEOPLE in 2008. However, my problem is that if I can train at this pace then I can still run but I certainly cant compete! Thanks for the enlightening article. In practice, the indications for aortic valve replacement for severe aortic stenosis or severe aortic regurgitation are straightforward and uncontroversial. This gives a chance for the sternum, which was split during the operation, to heal completely. When we go back to re-replace a patients prosthetic valve, for some reason, it usually has to be chiseled out from the heart. She said it could still be 6 months to a year just depending on if there are any more changes to this next echo. The confusing thing I hear is some cardiologists telling BAV people not to life over x lbs. His doctor recommended he see a pediatric cardiologist within 1-2 weeks but when I called they cant get him in until April 14th. After an MRI, Ive been diagnosed with BAV and mild aortic coarctation. Great article! Do you think the weights Im doing at the moment seem OK with those results ? In large-scale pre-participation cardiac screening programs for young, competitive athletes, BAV is one of the most commonly identified abnormalities. We saw cardio in April again and my sons symptoms are the same and no progression on the aortic regurgitation. But if you have a bicuspid aortic valve, you only have two cusps. They are also predisposed to enlargement of the ascending aorta, the large blood vessel that carries blood flow away from the heart. Hector V. Ive never heard about a mechanical aortic valve becoming loose because of high HR. She says now it is stable and I dont have to see her for 2 years. Another possibility that you havent mentioned deserves some discussion with your sons doctor(s) or surgeon. The numbness/tingling has me constantly worriedand the slight chest pains have me always thinking is that my BV or Aorta causing issues?. Enlarged lv 37/58 mm rf 65 fs 36 Left ventricle (LV diastolic diameter 54mm|58mm, LV diastolic volume 142ml|167ml, LV systolic volume 39ml|57ml, Ejection fraction 72%|65%); From afar, its hard to know what might be responsible for your symptoms. Aortic stenosis, the narrowing of the aortic valve.